On May 3rd and 4th, 2025, our global community came together for the annual CACNA1A 5K Run, Walk, & Roll, and the results were truly inspiring. With nearly 800 participants across 40 teams, spanning 29 states and 9 countries, we raised an incredible $150,000 to accelerate research and bring hope to families affected by CACNA1A-related disorders.  

Together, we proved that every step counts, and every dollar brings us closer to new treatments and a brighter future.

Special Thanks to Our Top Tier Sponsors:

Trailblazer: Potomac Urology

Marathoner: Charles Schwab, Rifton

Speedster: Bob and Lorna Ondrasik, MJC Agency, Spark Good

Pace Setter: Campbell Financial Services, The CE Shop, Elevated Design, Matthew Sokolowski, Paul the Plumber, Peak Martial Arts, Skaug Brewers, Spark Good, State Farm—The Cambria Agency

Contest Highlights:

Spirit Award: Team Matteo RS brought the energy with participants from the U.S., Puerto Rico, and Germany!

Philanthropy Award: Battle for Barri topped the charts with its outstanding fundraising efforts.

Miles of Smiles: Noa Curth from Team Peanuts No Shells wowed us with the brightest CACNA1A Champion smile.

Adaptive Tricycle Giveaway: Congrats to Elizabeth Cavanaugh from Team Demandalorians, winner of the Rifton tricycle.

Thank you to everyone who ran, walked, rolled, donated, or cheered us on.

You made this event unforgettable!