Our children find it challenging to walk and talk. They deal with serious medical issues, such as life-threatening seizures and migraines that cause muscle weakness and paralysis. Many variants cause neurodegeneration, meaning brain cells are dying. The clock is ticking. There are no clinical trials. There is no treatment. There is no cure. YET.
We are passionate parents on a mission to aggressively fund life-changing research. We plan to bring our families, doctors, and the world’s best scientists together in a collaborative effort. We are committed to accelerating the research process to find targeted treatment options and a cure for today’s generation of CACNA1A patients.
Be a part of the mission
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We are committed to…
🧬 Increasing awareness of CACNA1A variants
🧬 Supporting individuals and families affected by CACNA1A
🧬 Raising funds to advance research and treatment options to find a cure for CACNA1A
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